This website was developed through a research grant from TinyLife to a team of researchers linked to the Centre for Evidence and Social Innovation and the School of Nursing and Midwifery at Queen’s University Belfast and the University of California San Francisco. The first stage of the research project involved talking with groups of parents about their needs and experiences after they went home from hospital with their premature baby and doing a systematic web search of websites that are currently available as a resources for parents. This research informed the structure and content of this web resource.
Each section of this web resource provides written and video based information. The advice is based, where available, on current professional guidelines and recommendations. The text was written by a member of the research team and reviewed by at least two health and social care professionals in Northern Ireland. Parents told the research team that often the most helpful advice comes from someone who has ‘been there’ in a similar situation. So, for most sections there are short videos of real parents talking about their day to day experience of being at home with and caring for their premature baby .
We would like to thank all the families who have so willingly shared their experiences to help other parents, as well as the health and social care professionals who took part in the development of this resource.
An advisory group was established to develop a web resource reflecting the first stage of the research project. The advisory group included:
The second stage of the project will be an evaluation of the web resource to find out parents’ views and experience of the content and style of each section. We look forward to your feedback and to continuing to develop the website to make it even more helpful to parents at home with their premature baby.